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October 2004 - Ref 034 From welfare to well-being - planning for an ageing society: Summary conclusions of the Joseph Rowntree Foundation Task Group on Housing, Money and Care for Older People This summary report sets out the findings and policy and practice recommendations from the Joseph Rowntree Foundation Task Group on Housing, Money and Care for Older People. It proposes a fundamental shift in the way that society and government address our ageing population in order to tackle the age discrimination and inequality that are still endemic in society today. The recommendations are built around eight building blocks for change. Each of these building blocks aims to support an approach which underpins the rights of all older people as citizens, values and supports the contribution which older people can make to society, both individually and collectively, and gives active and more vulnerable older people greater choice and control over their lives and decision-making. Key findings
Key recommendations These recommendations summarise the key actions which are needed to take forward the eight building blocks that the Task Group has identified.
The Task Group Taking account of the fact that most older people live in ordinary, rather than specialist, housing and the growing aspirations of older people to retain independence, choice and control in older age, the brief was broadened to address the wider challenges of planning for an ageing society. The group rejected a traditional service-led agenda. Instead, it focused on how change could be driven by enabling older people to have more resources and control to make their own decisions, and to challenge both policy-makers and planners (and the market in its widest sense), to meet their needs and aspirations. This meant addressing fundamental issues of poverty, equality, rights and social inclusion, as well as the types of services that older people want, and how they are delivered and paid for. The group was not able to look at all these issues in depth, so it has sought to identify the key building blocks which need to be put in place if the fundamental changes required to plan successfully for an ageing society are to happen. Task Group members came from a range of backgrounds, bringing different skills, knowledge and experience. Members are listed on the back cover. The approach of the group has been to draw on its expertise and collective evidence, backed up by published evidence from research, and policy and practice reports. The Task Group spread the debate wider by publishing a discussion paper in October 2003 titled Quality of life for older people: from welfare to well-being. The paper is available on this website. The group received a wide range of responses from older people, policy-makers, planners and service providers, and has taken account of these in producing this report. The group also prepared a briefing paper and jointly convened, with the Association of Directors of Social Services, two discussion meetings with a number of interest groups and bodies that included older people. The purpose of the meetings was to find out:
This summary report also reflects a number of the issues raised in these discussions. In debating and expressing ideas, members reflected distinct views and priorities, which did not always coincide. The content of this summary report therefore reflects a process which the Task Group has gone through of challenging each other and reaching consensus about the key issues for debate and action. The fact that it has been able to reach such a consensus is significant. Background
Changing policy
The Association of Directors of Social Services and Local Government Association have picked up the theme around prevention in a recent discussion paper (ADSS & LGA, 2003) and argued for a shifting of the balance away from a focus only on acute care and the most frail older people (see Figure 2):
"Future services need to reverse this trend by inverting the triangle so that the community strategy and promotion of well-being is at the top of the triangle and the extension of universal services for all older people is seen as crucial to all agencies" (Figure 3).
ADSS, LGA, the Audit Commission, the Better Government for Older People programme, and the Nuffield Institute for Health are coming together to promote this broader approach. They are focusing on developing thinking around the meaning of prevention (Wistow et al., 2003) and the changes needed if public services are going to meet the needs of tomorrow's older citizens (Carrier et al., 2004). A recent discussion paper states: "A radical change of perspective is needed if public services are
to meet the challenges of our ageing society. This approach may not
cost more; it involves a better use of resources and more effective
ways of public services working together in the interests of
citizens." Government policy
Eight building blocks for change
A key part of changing the mindset from the current narrow focus on dependency and illness to a more inclusive approach for the wider older population is to adopt an older people-centred vision and culture which promotes quality of life and choice. 1. Vision
A number of areas have now adopted a local vision. For example, The Quality of Life Strategy for Camden's older citizens (Camden LBC, 2002) and the Darlington Strategy (Darlington Borough Council, 2000) are both good examples which set out a clear vision based on the above principles. 2. Culture Older people being assessed for and receiving health, care and other services talk about being faced with a culture that is over-protective and ‘risk averse’. They highlight the need for a culture change which enables them to retain their sense of freedom through balancing choice, risk and safety in a way that does not over-protect and over-control.
For the Task Group, therefore, having a clear older person-centred vision and culture is central to underpinning the changes in thinking and action proposed in this discussion paper.
The Task Group is clear that it not possible to deliver on the vision unless the underlying causes (which have allowed ageism and inequalities to limit the quality of life and well-being of older people) are addressed. The importance of addressing ageism is highlighted in the Economic and Social Research Council Growing Older (ESRC GO) programme, a major research programme to improve knowledge on quality of life in older age. Several GO research reports (Dean, 2004) highlight the impact of ageism, and the need to re-integrate older people into mainstream services; the first standard on tackling age discrimination in the National Service Framework (NSF) for Older People recognises this. Respondents to the discussion paper published by the Task Group in October 2003 (Quality of Life for Older People: from welfare to well-being) reinforced the importance of following an age equality approach. One respondent said: "Every time a bus route is changed or adult education classes are programmed without consideration for the impact on older people and how they might want to live their lives, there is a potential for indirect age discrimination. The exclusion from so many ordinary things in life that everybody values puts older people in an overlooked category. No wonder well-being suffers. In addition, the fifteen per cent of older people with significant health and care needs do not get treated on the same basis as younger people. Disability benefits discriminate on age grounds – there is no mobility component to Attendance Allowance (unlike Disability Living Allowance), which means that disabled older people do not have the opportunity to be active and lead their own lives that younger disabled people have. Cost ceilings on care packages are lower than for younger people, so that older people get only safety net services at home and are forced into residential care earlier. There are different mental health services, with massive under-diagnosis and under-treatment of older people." The Race Relations (Amendment) Act 2000 requires all public bodies to promote race equality. There is a process laid down by which they should do this, and legislation is planned to promote equality in relation to disability. There is no good reason why local authorities and other public bodies should not promote equality on other grounds, such as age. The devolved administrations already have a duty to promote equality (or equal opportunities, in the case of Scotland). Northern Ireland has already started implementing this, which is beginning to make a difference. As the new equalities framework is developed in England through the proposed Commission for Equality and Human Rights (CEHR), there is a need to ensure that age discrimination is treated in the same way, and with the same priority, as race discrimination. It should not be limited to age discrimination in employment, as at present.
It is self-evident that older people who have sufficient independent resources of their own are in a much better position to make decisions and choices about their lives in older age than older people who are dependent upon accessing benefits from the state, or who have only limited resources of their own. Older people with their own resources do not have to move to a care setting to get care on a 24-hour basis, or move to sheltered housing because they cannot get their grass cut or their house cleaned. They can pay to get services into their home. The Economic and Social Research Council Growing Older programme highlights the importance of addressing not just ageism and inequality but also poverty as prerequisites to promoting quality of life in older age, and to ensure the right climate in which older people can lead their lives. Two million pensioners still live below the poverty line. The remit of the Task Group did not extend to cover in depth the broader debate on pensions and income in retirement. However, the group would emphasise the fundamental importance of increasing pension levels to achieve what Age Concern, in its recent research carried out by the Family Budget Unit at York University (Parker, 2002) refers to as 'Modest but adequate - a reasonable living standard for households aged 65-74 years'. The group believes that increasing pension levels to achieve the income levels set out in that report would enable many more older people to retain control of their decision-making and their lives, and have a substantial impact on reducing pressure on the formal welfare service sector. Furthermore, because older people would be determining what they wanted, not what the State thought was good for them, or that they needed, more purchasing directly by older people would make a substantial impact on the future pattern of services available over the years. Although there is an emerging consensus with government about much of the policy direction, this has not applied to pensions and income. Here the government has taken small incremental steps around fuel poverty, the Minimum Income Guarantee, Pensions Credit and raising pension levels above the rate of inflation. It has not restored the link between pensions and earnings, or addressed the issue of income in retirement in the round. The current framework is fragmented. A more root and branch programme of reform is needed, covering a comprehensive view of income in retirement. The three main components should be:
The Task Group believes that to put older people in control there needs to be:
Information, advice and advocacy are central to shifting the current emphasis from one of rationing welfare services to one of promoting well-being, based around a citizen-led rather than client-focused approach. This was reinforced by the responses received in the Task Group’s discussion paper. Key principles are set out in Figure 4.
The Task Group has identified that a key dimension for older people themselves (and other people who may advise them, such as family, friends, and advice agencies) is the pattern of transitions in people’s lives and circumstances, and their implications for information, income, housing and service choices. Society needs to develop a much better understanding of these transitions, and how older people can access the information, advice and support to handle them. Pre-retirement planning includes providing information to older people about key transition areas, so that they can anticipate the potential impact of some of the transitions. The group recommends this as a key area for research. The group believes that one of the major ways of driving change from a 'service-led' to 'consumer-led' approach is to put as much purchasing power as possible directly in the hands of older people themselves. It would like to see progress on two fronts. 1. Increasing the level of direct purchasing by older people
themselves 2. Addressing under-claiming of income to which older people are
entitled
Research for the National Audit Office (Craig et al., 2003) shows the benefits of additional benefit income and the impacts of under-claiming. These are set out in Figure 5.
Many of the things that older people want cannot be met by local or national government or the health service. Older people are consumers out in the market place, along with all other groups of the population. In some areas, and for some groups of older people, the market works well, with products and services directly geared to meet the needs and aspirations of older people. One example is the development of insurance products by organisations such as Saga and Age Concern. However, in many other areas the market has up till now failed to provide the types of products and services that older people look for. Examples are the shortage of extra care sheltered housing for sale and the high cost of single-room holiday accommodation. This also applies to the range of financial products that older people want. Up till now, older people have shown little interest in various market mechanisms, such as long-term care insurance, to fund their own care, or to save and prepare for advanced older age with care or support and various accommodation options in mind. These aspects need considering. Perhaps older people’s views are changing and the market could respond differently. However, stimulating the private market is about much more than paying for care. For example, the government has been trying to encourage the use of equity release to enable older people to fund adaptations to the home, personal care (via insurance plans or through paying directly) or to secure more disposable income. There is uncertainty whether the current slow take-up relates to a lack of interest by older people, or, as the Task Group suspects, is more to do with current products not being attractive enough for older people to purchase. There is also concern about equity release possibly negating means-tested benefits. The question is whether the issue is still about making the right products available, or about promoting the concepts of insurance, pensions, savings products and equity release schemes to improve take-up. Further product development is required to meet the priorities which older people have identified; for example:
Currently, there appears to be a lack of confidence about some products. In addition, there is a lack of confidence about products for people on lower incomes, and for people with lower value homes. Several initiatives seek to bridge the welfare and market models. One example is Houseproud.
In the absence of large-scale increases in the basic pension, the Task Group has identified the need to make paramount further progress on insurance and equity release mechanisms to assist in paying for housing, care and support. Alongside this, there is a need for initiatives to open up different methods and routes for take-up, such as local authority guarantees and tax incentives. More widely, there is a need to educate the private sector about the older people's market and about the type and cost of products and services that older people want to purchase, both as necessities and by choice, to improve quality of life in older age.
The Task Group believes that a key priority for change is to shift the focus from crisis support for vulnerable older people to a much more pro-active approach to support the wider older population to live full, active and independent lives for as long as possible, as was shown in Figures 2 and 3. A radical rethink is needed to move the current approach from one of managing dependence for a small part of the older population, to promoting independence and well-being for the older population as a whole. The Task Group proposes three areas of action: 1. Refocusing prevention as mainstream through developing Quality of
Life Strategies and partnerships with older people at local
authority level
A growing number of local authorities are now promoting an active ageing approach through developing Quality of Life Strategies for an ageing society.
The main issues raised by older people are: recognition, ownership, information, contact, and having an active role in the community. 2. Rethinking approaches to service delivery
Some areas are now beginning to rethink the approach to service development, and are looking to develop a more mixed economy of services. These comprise:
We see the evolution of new models of service development, which get away from traditional welfare approaches, as key to putting a quality of life approach for older people into practice. 3. Developing a neighbourhood approach
Yet research for the Housing Corporation (Fletcher, 2000) and Age Concern England (Riseborough, 2000; Riseborough & Jenkins, 2004) has shown that, at neighbourhood level, older people have often been marginalised from the regeneration process. This is despite the fact that they are normally the most stable population group because they have lived in a community for longer, move less often, and have more time on their hands. In addition, services are still generally planned in isolation rather than on a geographical or neighbourhood basis. The Task Group found, however, that some areas are working on a neighbourhood basis to bring together older people and agencies as partners in planning for older age, based on a positive view of ageing. This is based on the recognition that older people identify with the natural community where they live. If the home and environment are enabling and supportive, then older people are much more likely to maintain independence and a good quality of life than if this were not the case. Focusing on a community or neighbourhood level also offers the potential to link into the often well-established community development approaches used in regeneration or neighbourhood renewal initiatives, and to ensure that prevention is not just driven by or seen as the responsibility of health and social services. It also fits in with the community support networks which still exist in many smaller (sometimes more rural) communities, where professional services are more dispersed and self-help and mutual support are the order of the day. For example, some parish councils preparing their parish plan explicitly look at the needs of their older population and stimulate a range of initiatives to address social isolation or provide practical services. Slaley Parish Council in Northumberland, for example, following the preparation of its parish plan, has linked up with Age Concern to provide a rural shopping service, using Age Concern staff and local volunteers. Benefits reported by areas adopting this type of approach are listed below:
It is therefore important that this active ageing and prevention approach, in partnership with older people, is promoted and embedded in regeneration and Housing Market Renewal areas.
One of the starting points for the Task Group has been to address the role of housing and housing-related services as a key dimension of living well into older age. Much of the attention around housing for older people has focused on specialist services for the minority of older people who live in sheltered-type housing. The group believes that this needs to be matched by an equal focus on the ninety per cent of older people – owners and renters – who live in ordinary housing. In addition, a growing number of older people are home owners, and a significant proportion of them are income-poor, even though they have a capital asset in the form of equity in their home. The place of older people in the housing market is an important dimension to address. Supporting older people in ordinary housing settings
The Task Group’s October 2003 discussion paper provides examples of such services and illustrates the value that housing-related preventative approaches, such as appropriate design, availability of adaptations, handyperson services, and flexible support services, can have in helping to shift the balance of services for older people away from the dependency approach for the few to the enabling approach for the many. However, they are still often developed on a one-off or fragmented basis. The Housing Options for Older People (HOOP) tool, developed by the Elderly Accommodation Counsel, identified several topics (domains) which can impact on whether or not someone's home, and the environment and services linked to the home, are meeting their needs in older age. They cover:
There is a need to develop a more coherent approach which ensures that a range of initiatives is in place to address all the domains covered in the HOOP tool. This would enable older people to make more informed decisions about whether to stay put or move, and how to ensure that their housing choice, together with other aspects, such as environment and services, can meet their needs and aspirations. Housing-based models of care A shift away from nursing and residential care towards housing-based models of care has started. However, the Task Group was concerned to ensure that these models reflected a real cultural change away from a 'dependency' to a 'promoting independence' approach built around quality of life principles. The group believes that it is essential for providers and commissioners to implement a quality of life assessment system and has commissioned the development of a toolkit for this purpose. This will be published in due course. So what should the specialist accommodation system look like? There are increasingly expressed views that the role of traditional residential care will be replaced by more specialist nursing home care at one end of the spectrum, with the development of more flexible and joined-up service models for older people in ordinary housing at the other. What role will be left for traditional sheltered housing? And what role will there be for the newer range of housing-based models of care that are emerging? Many areas are looking at developing extra care housing, but is the current interest a transitional phase that will last for 10-20 years and then become outdated, as further accessible models of ordinary housing are developed alongside a range of care and support services? Consumer feedback from people living in housing-based models of care is generally positive, citing design features, the service model, and the philosophy of promoting independence and ‘help to help oneself’ (Fletcher et al., 1999; Helen Ogilvy Associates, 1999; Croucher et al., 2003). However, some people, who have moved into these schemes, have expressed reservations about perceived loss of freedom, whilst a small number have wanted to be looked after in a traditional care setting. The evidence so far indicates that those housing and service models that are based on ‘quality of life’ principles can have a valuable role to play:
However, they should not be seen as the solution at the expense of supporting older people in ordinary housing where that is their choice. Breaking tenure divides
There has also only been limited interest so far in developing private sector housing-based models of care. Most private leasehold housing is still firmly decoupled from care and support services, with the individual or their family being expected to purchase their own care and support services. The private market for assisted living has not taken off. Some twenty per cent of McCarthy and Stone developments are now assisted-living schemes, and some residential and nursing home providers have developed small housing-based schemes (sometimes known as close care) alongside their care homes. A significant expansion of specialist providers of very sheltered housing for sale has not developed, as might have been expected. In addition to developing capital and revenue models that will appeal to the range of financial circumstances of older people, there is also a need for a much more pro-active approach from local authorities and their partners to stimulate and promote the development of the private and mixed tenure markets in their area. Although the housing and regeneration arms of local authorities actively work with private housebuilders, this does not seem to apply so much to the private retirement housing market. How many local authorities, for example, in planning to shift the balance of provision from residential care to housing-based models of care, such as extra care housing, explicitly include housing for sale as part of their plans. And how many approach private sector players as potential partners? Responses received to the Task Group’s discussion paper show that current planning arrangements appear to inhibit private sector developments of extra care-type housing. With the growing number of older home owners, and increasing equity values, there is a major onus on local authorities, including planning departments, to stimulate the private market and encourage mixed tenure for low equity value home owners.
Central government actions
1. A broad-based national strategy for an ageing society 2. Local strategies for an ageing population 3. Leverage for change - a suitable performance framework 4. Creating an equitable approach One example highlighted in research (Oldman, 2000) is the difference between registered care homes and other forms of supported housing for older people, such as sheltered housing and extra care. In the former, older people pay a blanket fee to cover all their costs and do not receive housing and other benefits. Once their costs are paid, they are left with only £15 or so pocket money a week, not much with which to exercise choice and control. In contrast, people in supported housing schemes have housing rights, are eligible for housing and other benefits, and pay separately for accommodation, support and care costs. This allows for more disposable income and choice in how people spend their money to meet their individual needs.
A second highlighted example is the postcode lottery as to eligibility for adaptations and Disabled Facilities Grants (DFGs). For example, some local authorities will not let housing associations apply for DFGs on behalf of their tenants. Action by government is needed to address key areas of inequality and develop a more equitable approach. Local level actions 1. Turning the planning system from managing dependency to
promoting active ageing Some new planning models are emerging. For example, the government guidance Preparing older people's strategies (ODPM, DoH, and Housing Corporation, 2003) includes a broad-based, whole-systems planning framework based on five levels, ranging from citizenship and active ageing (level 1) to hospital and long-stay residential and nursing home care (level 5). The framework allows for the full range of current services to be mapped - from leisure and learning at one end to nursing homes at the other - for each level. It can be applied at both local authority and neighbourhood levels. The framework can be used as a planning tool to change the future balance of services upstream. The goal should be to shift the balance of services and resources from the more dependent levels 4 and 5 into levels 1, 2, and 3. This is in line with the priorities set by older people about living well into later life (mainly levels 1 and 2). A summary of the framework is provided in Figure 6. The group believes that local authorities and their partners need to adopt a mapping and planning tool such as this to ensure that their strategies address the extension of universal services for the older population as a whole, as well as specialist services for more vulnerable older people. 2. Local and regional strategy, and commissioning structures with
older people as partners This approach can lead to the development of an overarching strategic approach for the ageing population. This is particularly important for both social services and Primary Care Trusts (PCTs), since it:
An approach based around the LSP and Community Plan can set the culture and strategic direction within which to address some of these very different requirements for commissioning, if it is to move from a service-led to an older people empowerment model. A growing number of LSPs are setting up Partnership or Commissioning Boards which go beyond health and social care and link in with the wider LSP agenda - areas such as transport, leisure and education. The Task Group believes that all areas should adopt such broad-based partnership structures. As regional strategy and commissioning structures evolve, the same principles need to be adopted at regional level. In addition, older people need to be given the opportunity to be engaged as partners in planning through forums such as Elders’ Councils and Senior Voice Forums, and to engage directly as members of LSPs and Partnership Board structures. Older people also want to play a part in directly commissioning initiatives which will address their priorities, as they see them, rather than the normal pattern of professionals interpreting what older people want, and commissioning on that basis. 3. Rethinking resource use and priorities - a whole-system
financial framework
The country needs to develop a much better understanding about the range of resources – both capital and revenue – which impact on the older population. Major issues are the:
Yet society is still caught up in traditional welfare thinking about cash-limited budgets and rationed services. Thinking about all the resources potentially available if used creatively together to put the older person in control will require a major cultural shift away from service and resource rationing towards service and resource choice - within the financial limit that the local authority is able to commit. Local authorities and health purchasers need to broaden their approach from thinking it is their role to manage the market, to one of enabling older people to increase their direct purchasing power as a way of developing the market and making it more efficient. This discussion raises the further issue of how one jointly commissions in a way that can put different sources of funding and income together flexibly. Evidence needs to be collated to demonstrate the mutual benefits of jointly commissioning resources across a much wider framework than at present - beyond health and social care and into housing, social regeneration, leisure, learning and transport. There needs to be common agreement and a common approach between commissioners about how they move towards an older people-led approach in resource terms. This means:
References Association of Directors of Social Services, Local Government Association, BGOP, Audit Commission and Nuffield Institute for Health (2004), Public services for tomorrow’s older citizens: Changing attitudes to ageing. ADSS and LGA. Association of Directors of Social Services and Local Government Association (ADSS & LGA) (2003), All our tomorrows: Inverting the triangle of care. ADSS and LGA. Carrier J et al. (2004), Older people - a changing approach. Audit Commission/BGOP. Camden London Borough Council (2002), The quality of life strategy for Camden's older citizens. Camden LBC. Clark H, Dyer S, Horwood J (1998), That bit of help: The high value of low level preventative services for older people. Joseph Rowntree Foundation. Findings No. 768. Craig G, Dornan P, Bradshaw J, Garbutt R, Mumtaz S, Syed A, and Ward A (2003), Underwriting citizenship for older people: The impact of additional benefit income for older people. University of Hull/University of York. Croucher K et al. (2003), Living at Hartrigg Oaks: Residents' views of the first continuing care retirement community. Joseph Rowntree Foundation. Findings No. 913. Darlington Borough Council (2000), Growing older in Darlington: Integrated strategy for older people. Darlington BC. Dean M (2004), Growing older in the 21st century. ESRC Growing Older (GO) Programme. Department of Health (2003), Tackling health inequalities: A programme for action. Department of Health. Fletcher P (2000), Social inclusion for vulnerable people: Linking regeneration and community care - the housing, care and support dimensions. Pavilion Publishing, for the Nuffield Institute for Health and the Housing Corporation. Fletcher P, Riseborough M, Humphries J, Jenkins C, and Whittingham P (1999), Citizenship and services in older age: The strategic role of very sheltered housing. Housing 21. Hayden C and Boaz A (2000), Making a difference, BGOP programme evaluation report. University of Warwick. Helen Ogilvy Associates (1999), Evaluation of Fairfield Court, Anchor Trust. Help the Aged (2003), Income index for older people in England and Wales. Lewis H, Fletcher P, Hardy B, Milne A, and Waddington E (1999), Promoting well-being: Developing a preventative approach with older people. Nuffield Institute for Health/Anchor Trust. Murtagh M, Cresswell T, and Bailey K (2003), Ageing and inequalities: Tackling inequalities in older people's health in the North East of England. Northern & Yorkshire Public Health Observatory. Newcastle Elders Council (2003), The way ahead. Newcastle City Council. Nuffield Institute for Health, University of Leeds (2003), Healthy ageing in healthy communities, Papers from Expert Seminar. 27 January 2003. Office of the Deputy Prime Minister, Department of Health and the Housing Corporation (2003), Preparing older people's strategies - linking housing to health, social care and other strategies. ODPM. Oldman C (2000), Blurring the boundaries: a fresh look at housing and care provision for older people. Pavilion/Joseph Rowntree Foundation. Findings No. D40. Parker H (2002), Modest but adequate: a reasonable living standard for households aged 65-74 years. Age Concern England. Riseborough M (2000), Overlooked and excluded. Age Concern England. Riseborough M and Jenkins C (2004), Now you see me… now you don't: How are older citizens being included in regeneration? Age Concern England. Ungerson C and Yeandle S (2002), Shifting boundaries of paid and unpaid work. Economic and Social Research Council. Wanless D (2002), Securing our future health: Taking a long-term view. HM Treasury. Welsh Assembly Government (2003), The strategy for older people in Wales. Wistow G and Lewis H (1997), Preventative services for older people: Current approaches and future opportunities. Anchor Trust. Wistow G, Waddington E, and Godfrey M (2003), Living well into later life: from prevention to promotion. Nuffield Institute for Health. Members of the Task Group Sir William Utting (Chair) Trustee, Joseph Rowntree Foundation |
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