March 2002 - Ref 312
Designing and managing care homes for people with
dementiaThe proportion of residents in care homes who have dementia
is rising. Caroline Cantley, Professor of Dementia Care, Northumbria
University, and Bob Wilson, consultant in care home design, studied
seven recently built specialist homes for people with dementia which
have been nominated as examples of good practice. They identified
principles for providers involved in setting up or developing high
quality care homes for people with dementia. The study found:
- Early stages of planning and setting up a new home or unit are
crucial in laying good foundations for future practice. Good planning
included:
- ensuring plans matched local needs;
- developing a clear service model according to local
circumstances;
- developing the service model and building design in tandem;
- ensuring sites had good access to community facilities and good
public transport.
- Investment in good design benefited residents, staff and the
business. The homes studied all had a design brief before design
commenced; in some instances, this comprised a detailed document and
in others a draft, which was finalised with the co-operation of the
designer. Attention to detail enhanced the quality of life for people
with dementia.

- Good management was crucial. Best management practice included:
- ensuring staff and management had specific knowledge, skills and
commitment for dementia care;
- having staffing levels which provided residents with individual
attention;
- recognising that dementia care is emotionally demanding for
staff, and for managers, and responding to their needs for support;
- involving relatives and residents with dementia in influencing
individual care and the management of the home;
- maintaining good links with local health and social care
services, community groups and other local resources.
- The researchers conclude that - while the principles of good
practice are clear - there is no single 'right' way to design and
manage a care home for people with dementia. Decisions about design,
the model of service and economic viability need to be considered in
tandem.

Background
The proportion of residents in care homes who have dementia is
rising. The National Service Framework for Older People recommends
that local authorities and independent care providers should work
together to develop specialist dementia care places. Provider
organisations will therefore increasingly need to consider setting up
specialist dementia care homes or units within homes.
This study draws upon the experience of different types of provider
organisation with different financial underpinnings. In so doing, it
aims to show how much providers can achieve when they are committed to
translating the principles of good dementia care into the realities of
everyday life in a care home. Taking seven case studies nominated as
examples of good practice, the study identified the principles for
good practice in planning, design, management, care practice and
staffing.
Planning
The study found that the early stages of planning and setting up a
new home or unit are crucial in laying good foundations for future
practice. Best practice included:
- Ensuring that service values and principles are explicit and
implemented.
- Finding out what people with dementia and their relatives wanted
in a home.
- Developing good partnership working with
relevant local services and community groups.
- Developing a clear service model; the best option varied
according to local circumstances. Considerations included, for
example: the balance between nursing and social models of care;
whether to have a specialist home or integrated dementia unit(s);
whether to incorporate respite places or day care places; whether
providing a 'home for life' is a goal; and the extent to which the
home will have a homogeneous or mixed resident group in terms of
dependency and other social characteristics.
- Considering carefully the optimum size for
the home and units within the home. There are significant benefits
in having small-scale units (defined variously as around 8 to 15
residents). For economic reasons, however, providers often find it
necessary to have group sizes of 15, with overall home sizes of over
45. Larger homes and units do not preclude high quality care but the
experience of living and working there is inevitably qualitatively
different to that in a smaller setting.
- Ensuring that the designer is given a clear
brief and either has appropriate experience or is capable of and
committed to the relevant research. The homes studied all had a
design brief before design commenced; in some instances, this
comprised an excellent, detailed document and in others a draft,
which was finalised with the co-operation of the designer. Small
independent companies or owner/managers may lack resources or
necessary experience and have to rely upon experienced designers and
building professionals to guide and deliver them. Selecting the
right designer is therefore essential.
- Ensuring that fundamental dementia design
principles are addressed in creating a homely environment for
residents, for example, by observing domestic scale, where
appropriate, in design and using familiar materials and colours.
- Ensuring a smooth transition from building
contract to operation by treating the opening of a new home as a
project in itself.
- Planning in detail for the early days and
weeks of the home, considering in particular what residents with
dementia, their relatives and the staff group will experience.
Design
Effective design provides the basis for a successful home. In
commercial terms, good design:
- improves residents' quality of life;
- results in greater staff efficiency;
- is attractive to purchasers and relatives;
- incorporates cost-effective use of space;
- can improve occupancy rates.
The publication of National Minimum Standards in accordance with
the Care Standards Act 2000 sets new requirements for designers and
providers. The basic accommodation needs of people with dementia are
the same as for other residents. However, people with dementia
particularly benefit from an environment that provides:
- small-scale living units;
- familiar features and a homely style;
- scope for involvement in ordinary domestic activities;
- good signage and 'cueing' features, for example, by providing
well-lit, inviting entrances to day rooms;
- additional space for daytime activities.
Good design:
- meets the needs of disabled residents;
- maximises independence;
- enhances self-esteem and confidence;
- demonstrates care for staff;
- is orientating and understandable, for example, by the provision
of easy visual access to day rooms - for both residents and staff -
and by the use of materials and objects of interest as cues for
following or 'sensing' a route;
- reinforces personal identity;
- welcomes relatives and the local community,
by, for example, the provision of attractive, comfortably furnished
entrance foyers, public and semi-public sitting areas;
- allows control of stimuli, such as the provision of a separate
quiet room.
Basic site features condition the design of a new home, although
the designer often has little or no influence on site selection. Many
criteria can be applied in selecting a site. However, in practice,
price, availability and access to a strong local community and a
frequent bus service are the prime determinants. Looking at the case
study homes, the research found:
- Only two homes studied were single-storey. Although access to
gardens from two-storey homes was not so easy, residents valued the
views.
- Gross floor areas of residents' rooms varied
from 13-18m2 but the important feature was the net usable floor area
with a rectangular shape of 12m2 (as recommended by the New Minimum
Standards).
- Staff differed about the merits of having combined or separate
dining- and sitting-rooms. However, the former provided a larger space
for activities and enabled more efficient use of staff time.
- Staff were more concerned about having manoeuvring space in
en-suite facilities than about the size of residents' rooms, so long
as there was adequate space around the bed to attend to residents.
- Only one home had showers in every en-suite facility. The use of
these was limited because most residents could not stand, or even sit,
in the shower and all needed assistance. In addition, few had
experience of using showers. Nevertheless, the majority of staff
interviewed considered that showers should be provided in new homes
because future generations of residents are more likely to be
accustomed to showers and therefore less likely to become discomforted
or distressed.
- The value of colour on residents' room doors
was uncertain. It appeared more important to have a large frame for
a personal photograph or picture.
- Staff favoured having an area where all
residents could meet. However, this was an expensive feature unless
it could be created by combining spaces such as the entrance foyer
and adjoining day rooms.
None of the homes studied used sophisticated technology related
directly to residents' care. Some interviewees raised concerns about
human rights and ethical issues in relation to new technology.
However, if and when such concerns were addressed satisfactorily, it
would be possible to install appropriate equipment.
Management
Some specialist dementia care homes are independently owned. Many
are part of larger 'parent' provider organisations, which may not
understand the differences between dementia care homes and homes for
physically frail older people.
One of the most significant tasks for a parent organisation is the
appointment of the care home manager. The culture and practices of a
home are in large part determined by the care home manager. The case
studies indicated that the most effective managers:
- Knew about, generally had direct experience of, and were strongly
committed to providing person-centred dementia care.
- Demonstrated commitment to a culture in which
staff communication and interaction with residents are valued as
core work.
- Maintained good multidisciplinary links with a wide range of
health services, social care services and other community groups.
- Were committed to involving relatives and residents with dementia
in influencing care practice and the management of the home.
- Were equipped to address the ethical dilemmas that arise in
dementia care, for example, in balancing the promotion of autonomy for
people with dementia against decisions being made by others in the
'best interests' of people with dementia.
- Had the personal qualities associated with good leadership in
dementia care settings, such as a non-hierarchical approach, leading
by example and, encouraging and stimulating creativity and innovation.
- Recognised that dementia care is particularly
demanding of staff and responded to their needs by, for example:
ensuring good communication and a sense of staff involvement and
ownership; by handling staff emotions and inter-relationships well;
and, by providing support through good staff supervision.
In addition, parent organisations supported managers by ensuring
that they:
- were clear about their roles and responsibilities;
- had as much autonomy as possible;
- felt valued and supported; and
- had ongoing management development opportunities.
Care practice
The case study homes all pursued person-centred dementia care.
Achieving this requires strong management commitment if staff are to
move beyond the tasks and routines of care to develop practice that is
imaginative and sensitive to individual residents. The research
indicates that a manager can support staff in this approach by
ensuring that they:
- Communicate well with residents in every aspect of life in the
home.
- Compile and implement care plans that are full, person-centred,
and appropriate.
- Facilitate appropriate activities for all residents, including
everyday activities such as helping with the washing up or doing some
gardening.
- Meet the needs of people with dementia for good nutrition and
enjoyable mealtimes.
- Recognise and address the general health,
spiritual and sexual needs of people with dementia.
- Provide palliative care when necessary.
- Minimise 'challenging' behaviour by understanding the person with
dementia and by adapting the environment or care practice to better
meet the individual's needs.
- Strike a good balance between the protection
of residents and the quality of life gains that come from taking
some risks.
- Maintain residents' links with their local community as far as
possible.
- Involve relatives in ways that are appropriate to the needs and
circumstances of individual residents and their families.
- Provide support for relatives either individually or through
support groups.
- Are aware that people with dementia are vulnerable to abuse and
will respond appropriately to any suspected abuse.
Staffing
The study highlighted the following features in the case study
homes:
- Staffing levels were appropriate for meeting residents' needs.
The most common care staff/resident ratio was approximately 1:4. In
homes with poorer staff/resident ratios, care staff felt under more
pressure to get on with tasks rather than spend time with residents.
- The contribution of domestic, catering, laundry, maintenance and
administrative staff was valued.
- Staff recruitment and selection procedures were effective. The
study homes found that applicants' values, attitudes and warmth of
feeling were more useful predictors of good care practice than prior
experience or qualifications.
- Induction arrangements provided the support that new staff needed
and imbued them with the culture of the home.
- Care staff felt valued as individuals, supported and
appropriately rewarded; working with people with dementia is very
demanding of staff.
- All staff had good foundation training in dementia care as well
as access to broader training and development opportunities.
- Staff management (for example shift patterns, cover arrangements)
provided residents with consistency of care.
- Any staff working in respite or day care facilities had skills
appropriate to that setting.
Conclusion
Our knowledge about how best to design and manage care homes for
people with dementia has advanced significantly but there is still
much to learn. This study concludes that while the principles of good
practice are clear, there is no single 'right' way to design and
manage a care home for people with dementia. Decisions about design,
the model of service and economic viability need to be considered in
tandem. With current standard revenue funding, providers of specialist
dementia care homes have to compromise in combining the implementation
of best practice principles and achievement of financial viability.
About the project
The research was undertaken by Dementia North, the regional
dementia services development centre based at Northumbria University,
in collaboration with Chapplow Wilson Associates, an independent
consultancy which provides specialised services in designing and
building for care.
The project was based on seven case studies of specialist dementia
care homes and on a literature review. The case study homes were
selected to include a broad range of types of homes and provider
organisations. Each home and/or organisation was recommended to the
researchers by experts in the field as being an example of good design
and as having a reputation for good dementia care. The case studies
involved observational visits to each home during which the
researchers variously had formal and informal discussions with
residents, relatives of residents, care and support staff, home
managers, service planners, staff from health and social services
agencies, and architects and other building professionals.
How to get further
information
For further information, contact:
Professor Caroline Cantley, Director, Dementia North, Allendale House,
University of Northumbria, Coach Lane, Newcastle upon Tyne, NE7 7XA,
Tel: 0191 215 6110, Fax: 0191 215 6193, email: caroline.cantley|@unn.ac.uk;
or Bob Wilson, Chapplow Wilson Associates, Millfield, Church Lane,
Nether Heyford, Northampton, NN7 3LQ, Tel: 01327 340803, Fax: 01327
349944, email:
bob.wilson@ChapplowWilson.co.uk.
The full report, "Put yourself in my
place": Designing and managing care homes for people with dementia by
Caroline Cantley and Robert C Wilson, is published for the Foundation
by The Policy Press (ISBN 1 86134 389 2, price £16.95).
Click on the 'order report' icon in
the left margin to order online.
|