August 2003 - Ref 813
An evaluation of a young disabled people's peer
mentoring/support project
Young disabled people face particular
barriers in growing up and becoming independent as their experiences
of direct and indirect discrimination may lead to a lack of
self-confidence and isolation from others of the same age and from the
opportunities non-disabled young people enjoy. The Young Disabled
People's Peer Mentoring /Peer Support Project developed a range of
activities to address these needs over a two-year period, building on
previous work. The project was evaluated with the help of both adults
and younger disabled people. The evaluation found:
- Barriers to independence can be reduced by supporting young
disabled people to meet and work together on common issues to learn
from each other and share experiences.

- The opportunity for young disabled people to direct projects
themselves, with support from other disabled people, improved the
understanding and independence of the individual young disabled people
involved and acted as a model for others of what could be achieved.

- Young disabled people preferred projects which offered a wide range
of activities and allowed them to use these at their own pace
according to their needs at the time. Activities in the project ranged
from socialising to campaigning.

- Linking young disabled people in one-to-one supportive
relationships could be a valuable experience for both partners. Young
disabled people who felt ready to work with their peers in this way
and to share their experiences benefited from training in this
approach.

- The project found that traditional peer 'mentoring' could be too
formal and was less effective , especially where young disabled people
knew each other well and were becoming friends. Some young people
benefited from the more flexible model of peer 'support'.

- Most young disabled people found that training in the 'social
model' of disability had a profound effect on their outlook.

Background
The Greater Manchester Coalition of Disabled People (GMCDP) is an
organisation totally controlled and run by disabled people for
disabled people. Over the past twelve years GMCDP has worked to
develop projects for young disabled people, reflecting their
understanding of the discrimination they face. The Young Disabled
People's Forum was created by GMCDP as a means of offering
opportunities for young disabled people living in the Greater
Manchester area to:
- meet with other young disabled people of a similar age, have fun,
share experiences and make friends;
- obtain information and support, and gain the confidence to
develop skills to make choices and take control of their lives;
- understand disability as a civil rights issues, with support and
guidance from within an organisation committed to the principles of
disability equality;
- become involved on a consultative level with various
policy-makers and service providers, to identify barriers and create
meaningful change.
Over this period GMCDP developed a range of specialist projects
such as an Independent Living Skills Programme, The Young Disabled
People's Resource Centre, Outreach/Advocacy Project, Drama
Consultation Group and a Wednesday weekly youth group meeting.
In June 1999 the Young Disabled People's Peer Mentoring Project was
funded by the Joseph Rowntree Foundation. Manchester City Council and
Manchester Health Authority funded activities which took place in the
'Forum'.
The idea for the Peer Mentoring Project came directly from young
disabled people within GMCDP's Young Disabled People's Forum. It was
designed to give them the chance to look at their experiences and
hopes, through the example of other young disabled people who were
setting up their own homes, managing their own personal support,
having relationships and/or going to work.
The project took the innovative approach of combining the values
and role models of mentoring with those of peer support. In doing this
the project aimed to create ways for:
- young disabled people to link with other young disabled people
(as mentors) because of their common understanding and experiences;
- young disabled people, who have taken control and are already
building successful lives, to learn how to support others and in this
way develop their own knowledge, skills and confidence;
- peer mentoring to give priority to building up young disabled
people's self-esteem and confidence;
- getting the positive messages from the project out to all those
involved in supporting young disabled people.
Over 40 young disabled people, aged between 15-25, became actively
involved in the project and 30 other young disabled people phoned
project workers for advice or information.
Setting up the project
Project workers' challenges in creating the project included:
- negotiating with family members and/or workers of residential
institutions;
- finding accessible venues and transport which was safe and
reliable;
- organising information sessions/presentations etc on issues young
disabled people wanted to know more about;
- ensuring all information was in accessible formats, e.g. Braille,
large print or tape;
- finding appropriate support workers, British Sign Language
interpreters and lip speakers, as and when required.
Just getting the meeting place made a huge difference to the lives
of many young disabled people. One young woman explained why she came
along:
"One, to get out of the house. Two, to meet with other people I can
relate to, in an environment I can relate to, where I'm not going to
get harassed by anybody else. Coming here can be a break from the
stress."
The social model of disability
The GMCDP's work is rooted in the 'social model' of disability (see
Box) and a training course on this model was offered to all the
participants in the peer-mentoring project.
Box
1: The social model of disability
The ‘social model’ of disability originated in the early
1970s, from a group of disabled people who wanted to
challenge the ‘medical model’ of disability, which viewed
disabled people as inactive and in need of charity,
treatment and/or change in order to fit into society. The
social model says it is the barriers arising from social
attitudes and organisation, including the environment, which
exclude disabled people. These barriers have consequences
for disabled people in terms of poverty, exclusion from
mainstream activities, lack of physical access and
opportunities to work, education, as well as the denial of
choice and civil rights. For young disabled people, this
experience of all-round discrimination can lead to feelings
of ‘internalised oppression’, with devastating effects on
their self-esteem. |
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Young people found discussing the social model of disability with
project workers who shared experiences was overwhelming at first. This
changed as their attention turned away from their own impairments
towards the attitudes and organisations they encountered in the wider
society.
"I think I've learnt a lot, in terms of the social model of
disability, the way to deal with the negative aspects, opinions and
discriminative nature of society that makes us disabled people. I've
been empowered to inform others, because in fact it's not about myself
being impaired that's the issue, it's more about the way society needs
to change to be more inclusive, to make everyday life for disabled
people more accessible. I think I wouldn't have been able to make that
statement two years ago. I think it's all to do with the whole nature
of the [Young Disabled People's] Forum. It makes you think in
different ways really. Makes you explore different things. Not having
to be concerned about being disabled, because you know that when you
are here in this building you're not in fact disabled."
As a result of this training, some of the young disabled people set
up a campaigning organisation called 'Barrier Free Zone' to challenge
the discrimination they faced. This was a pivotal point in the history
of the project's work with young disabled people, marking the point at
which they gained enough confidence in themselves to begin demanding
equality, control and involvement in many areas of the project.
Peer mentoring/support
The concept at the heart of the Peer Mentoring Project was that
some young disabled people had made considerable strides in achieving
a degree of independence in their living arrangements, training and
jobs. This success made them role models for other young disabled
people and a source of useful information.
Project workers wanted to create ways in which this knowledge and
experience could be shared with other young disabled people to the
benefit of both.
Peer mentoring involves training and a structured, private,
one-to-one relationship with another young person. It is used widely
in education and vocational training with young people at risk -
including young disabled people.
The project initially used it as a way of sharing experience
between young disabled people, but found it had to be modified
considerably in practice. There were a number of reasons for this:
- Many of the young disabled people in the
'Forum' knew each other before getting involved in the project, or
else became friends through the project. Attempting to formalise
relationships that had grown naturally was largely unworkable.
- Traditional peer mentoring involves a degree of formality and
often a hierarchy of knowledge and experience between mentors and
those they are working with, which did not fit with the values of the
disability movement or ideas of the project. However, a small number
of young disabled people from the 'Forum' had also been involved in
other peer mentoring initiatives, and had found them to be valuable
experiences. How much they benefited depended on issues such as: how
well the project was facilitated, worker/management commitment to self
directed initiatives, and to the principles of the disabled people's
movement as well as a commitment to equality issues.
- Many young disabled people found that it was the collective
membership of the Young Disabled People's Forum and particular
projects such as Barrier Free Zone and the drama group, rather than a
one-to-one relationship, which provided them with their most valuable
and productive experiences.
- As the project developed, concepts involving language and
assumptions altered. For example, many of the young disabled people
used the term 'peer support' in favour of 'peer mentoring'.
This strand of the project was renegotiated during the funding
period and assumed the following form:
- Some young disabled people with appropriate experience and
confidence trained as 'peer mentors', giving them an understanding of
confidentiality issues and ways in which they could deal with their
peers on sensitive issues.
- The trained mentors were paired with other
young disabled people and met with them privately to discuss issues
of mutual importance.
- This process was not seen to involve a hierarchical relationship
between unequal partners, but involved a concept of mutual peer
support, to which they both contributed.
- Other young disabled people obtained one-to-one support more
informally, as and when they needed it, from project workers and other
members of the Forum.
Outcomes
The young disabled people who had been trained and shared their
experience with their peers felt they had obtained considerable
benefits from the process.
"I think it's great. It's a chance to pass on some of my experience
and confidence and I would have liked it if it had happened when I was
younger when I needed it."
Young disabled people identified the value of a one-to-one
relationship of this kind as providing the opportunity to explore the
issues they regarded as important with someone:
- with the same background;
- of the same age and sex;
- with more experience of understanding the issues;
- able to provide information from a disability equality
perspective, to support the other person to make decisions and to help
build up self-esteem.
Confidentiality and trust remained central for young disabled
people to make sure the relationship developed well.
The project's impact
The young disabled people who came along to the weekly meetings
found:
- an informal place to meet other young
disabled people;
- a place to talk with and consult project workers and older
disabled people;
- training in the social model of disability;
- membership of active groups such as Barrier Free Zone and the
drama group;
- membership of young men's and young women's discussion groups;
- opportunities to participate in one-to-one peer relationships;
- opportunities to volunteer to help run aspects of the project.
For a number of young disabled people coming new to the project
there were many benefits:
- For some, this was the first real chance to
be away from their home and family surroundings, and to mix with
others of similar age and circumstances. They were coming into a
fully inclusive and accessible setting, against previous experiences
of isolation and exclusion.
- The training course on the social model of disability gave many
their first chance to make sense of their situation in a way that
supported their development, rather than putting them down.
- Talking with project workers and other young disabled people gave
them ideas and information about ways in which they could move on in
their lives and start to achieve goals.
- Taking part in one-to-one relationships and single sex groups
gave them the opportunity to discuss more personal issues with
supportive, knowledgeable peers.
- As young disabled people became more confident, they were able to
start to express their ideas and beliefs collectively through
campaigning groups such as Barrier Free Zone and the drama group and
develop new skills through the many opportunities for voluntary work
provided by the project.
Participants' perceptions of the value of the project reflect the
comprehensive impact it had on their personal feelings, understanding,
skills and hopes for the future:
"Being together is powerful, understanding the issues, supporting
each other."
"More self confident and independent."
"Understanding discrimination in all its forms and having the
skills and confidence to challenge it."
"My world is opening up for me, I can now try to do anything I
want."
About the project
The project was funded for two years and evaluated by a small team
of younger and older disabled researchers and advisors. Twelve young
disabled people volunteered to participate in two sets of interviews
as evaluation. The first set of interviews, at the beginning of the
project, explored young disabled people's expectations and why they
came along to the sessions. The second set took place towards the end
of the project to work through their experiences and the impact it had
made on their lives.
Young disabled people who joined the Peer Mentoring Project had the
chance to join all the activities offered by the Young Disabled
People's Forum, as well as to take part in a supportive one-to-one
relationship with another young disabled person, either as a trained
peer mentor/supporter, or as the person being mentored/supported.
How to get further
information
The full report, ‘Our life,
our say!’: A good-practice guide to young disabled people’s peer
mentoring/support by Julie Bethell and edited by Mark Harrison, is
published for the Foundation by Pavilion Publishing (ISBN 1 84196 055
1, price £16.95).
Click on the 'order report' icon in
the left margin to order online.
As well as the printed report, the
following formats are also available from Pavilion Publishing, priced
£21.45 including p&p and VAT where applicable: 20pt large print
(unbound; ISBN 1 84196 121 3), floppy disc (Word), CD (Word), Braille
(ISBN 1 84196 122 1), and audiotape (Tel: 0870 161 3505).
A companion CD-ROM,
Peer mentoring/peer support: A good practice guide by the Young
Disabled People’s Forum, tells the story of the project from the
perspective of the young disabled people and the workers involved in
the project. It is available from GMCDP, priced from £10.00. For more
details, Tel: 0161 273 8141/7870, email: gmcdpydpf1@btopenworld.com,
or write to: YDPF (GMCDP), BEVC, Aked Close, Ardwick, Manchester M12
4AN.
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