A new communication tool is helping people with dementia and their carers to communicate more effectively and feel more involved in making decisions, according to new research published by the Joseph Rowntree Foundation today (29 April, 2010).
The report - Talking Mats® and involvement in decision making for people with dementia and family carers - looks at how the low-tech communication tool, Talking Mats, can help people with dementia and their family carer (e.g. spouse, son, daughter) be more involved with decision-making about managing daily life.
Talking Mats, developed by Joan Murphy at the University of Stirling, uses a simple system of picture symbols on a textured mat. This allows people to express their views about various topics more easily, identify their strengths and abilities more clearly, and reduce anxiety of both the person with dementia and their family carer.
Joan Murphy, co-author of the report, said:
It is generally acknowledged that people with dementia may have difficulty admitting they are having problems due to memory loss and communication difficulties. Many also cannot manage day-to-day activities without some support from others.
The research showed that people with dementia felt Talking Mats clarified their thoughts and enabled them to express their views. The framework allowed them to convey their thoughts to their family carers, and helped them to reach a decision about how they were managing different aspects of their lives.”
The researchers reported a number of key outcomes:
Recent guidance from the Department of Health recommends that people with dementia should have more involvement in decisions about their care options. Government policy also states that people with dementia and their carers should influence how government strategies and targets are implemented. This latest research from the Joseph Rowntree Foundation has implications for the improvement and delivery of services and could also be a significant help in changing policy.
Philippa Hare, JRF Programme Manager, said: "If, as policy-makers suggest, the aim is now to truly engage people with dementia and their families in decisions about their care, then Talking Mats offer an innovative means of allowing the views of people with dementia and their family carers to be heard."
The research involved 18 couples (person with dementia and their family carer) who were asked to use their usual verbal communication methods, and then Talking Mats, to discuss four aspects of daily living: personal care (e.g. washing, dressing); getting around (e.g. walking, using the stairs); housework (e.g. cooking, making the bed); and activities (e.g. watching TV, listening to music). For more information on Talking Mats see www.talkingmats.com.