What needs to change so that older people, especially those with high support needs, can have 'a better life'?
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Understanding what will really help some of the most marginalised, and least heard, people in the UK - older people with high support needs.
Developed through extensive consultation with internal and external experts, this five year programme is focusing on a significant challenge: how to ensure quality of life for the growing number of older people with high support needs in the UK.
JRF will commission a range of work to inform and produce clear, costed recommendations for policy and practice that can help older people with high support needs now and in the future, whatever setting they live in.
JRF has committed £1.5 million to this programme over five years (2009 – 2013). Please note however that we do not accept speculative enquiries for funding. We issue call for proposals and invite submissions to them. There are no current calls for this programme.
Old age is not about 'them' – it’s about all of us. We’re all heading in that direction, and some of us will require a lot of support. We know that this life stage can bring real loss, difficulty and frustration…but portraying older people as dependent and a ‘burden’ is a barrier to thinking together. We need positive narratives and images of later life to challenge ageist assumptions. The question of affordability (to the State), although central, should not be allowed to sideline all other concerns.
Those already experiencing this life stage are the real experts. By listening to them (and especially to those with high support needs and from diverse backgrounds) we can better understand what they want and value – from life, not just from services. It does mean that we need to go the extra mile to encourage and support their voice to be heard.
The voice we can already hear reaffirms that, whatever our age and support needs, we all wish to be treated as citizens. This implies being able to live meaningful lives, based on strong, personal and respectful relationships, and making an active contribution to society.
Older people in the UK, including those with high support needs, are becoming more and more diverse, with hugely varying lifestyles, cultural backgrounds, expectations, financial circumstances, family composition, education, experience, and resources. Some face additional challenges because of interacting conditions and forms of discrimination. A 'one size fits all' approach won't meet all our needs.
Many of the challenges and even solutions aren't new - simple changes to the current 'system', such as making it easier to navigate, could lead to a better life. But we also need to open our minds to innovative approaches developed outside the UK, or for other groups/life stages. More could also be done to share learning across the four countries of the UK.
There is a real appetite for ways of living into old age that reduce loneliness, strengthen links with the community, and are based on mutual relationships and reciprocal support. Developing our understanding of how to promote happy and inclusive communal living can make a lot of difference to the lives of people in care homes, retirement villages or extra care housing schemes. In all settings, supporting the supporters (paid and unpaid carers and family members) is crucial to ensure a better life for older people, as well as for the supporters themselves.