Caring to work: accounts of working parents to disabled children

Carolyn Kagan, Suzan Lewis and Patricia Heaton

The pressures and challenges associated with the care of disabled children are well documented but little is known about how these parents combine paid work with caring.

This study analysed detailed accounts of parents from 40 families who are combining employment with care of disabled children.

It reveals that parents felt that employment had both economic and psychological benefits for them and their children. However, the researchers conclude that there is an urgent need for co-ordination between employers and service providers in the community to support these families if they are successfully to combine work and care.