Developing a national user movement of people with dementia

Rachael Litherland

The Dementia Engagement and Empowerment Programme (DEEP) is a growing user movement across the UK. It connects involvement/influencing groups of people with dementia – groups where people with dementia are working together to raise awareness about dementia – to policy-makers and decision makers, to influence local dementia practice and strategy, and to challenge the existing narrative about what it is like to live with dementia

This paper describes the growth of DEEP over a three-year period (2012–2015).



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